Ilsa's Story

Research & Funding Updates

Every Dollar Makes a Difference

The Ilsa Mae Research Fund and Muscular Dystrophy Canada are pleased to announce that matching funds for a $1 million (CAD), 3 country research project have been secured.   This is proof of no matter how small the donation, every dollar is one dollar closer to a cure. ____________________ E-Rare-2: Innovative Therapeutic Approaches  Common Pathogenic  …read more

An Evening with Dr. Jane Goodall

The Environmental Services of Association of Alberta (ESAA) is pleased to present An Evening with Dr. Jane Goodall, DBE in support of the Jane Goodall Institute of Canada (JGI Canada) and the Ilsa Mae Research Fund at Muscular Dystrophy Canada. Full proceeds from the event will be split between JGI Canada and the Ilsa Mae  …read more

Now Accepting On-Line Donations

The Ilsa Mae Research Fund is now accepting online donation, with the thanks of Muscular Dystrophy Canada. To donate to the fund and receive an official tax receipt, visit: http://muscle.akaraisin.com/ilsamae

RemTech 2014 Raises $40,000

ESAA’s annual Remediation Technologies Symposium (RemTech) raised $40,000 for Ilsa’s Fund. RemTech, held each October in Banff, AB is the major fund raising vehicle for the fund. The conference, a technical event focusses on the remediation of contaminated soils and sites. ESAA and the industry has been a huge supporter of Ilsa’s Fund and Muscular  …read more

ESAA Golf Tournament Results

The 19th annual ESAA golf tournament raised $9,500 for the Ilsa Mae Research Fund. The ESAA golf tournament is one of major supporters of Ilsa’s Fund. We gratefully thank ESAA, ESAA members and industry for all of their continued support. Full details online at: http://www.esaa-events.com/golf/charities.htm

Research Update October 2014

Update from Dr. MacKenzie: In Spinal Muscular Atrophy or SMA the nerve cells (known as motor neurons) which carry impulses from the brain and spinal cord to our muscular system dies off. SMA is one of the most common inherited causes of infant death with an incidence of 1 in 11,000 live births. Although SMA  …read more

Dr. Alex E. MacKenzie

(Childrens Hospital of Eastern Ontario – University of Ottawa) Preclinical Assessment of Clinic- Ready Agents for the Treatment of Muscular Dystrophy and Spinal Muscular Atrophy (2011-2014) Although the identification of genetic causes for inherited diseases like neuro- muscular disorders has greatly improved our ability to identify and understand the disorders, treatment options remain slim or  …read more